Reading Time: 19 minutesTL;DR: I reduced my MCAS symptoms—itching, hives, flushing and more—by following a comprehensive “MCAS kitchen sink protocol” combining antihistamines, mast cell stabilizers, and supplements. This post breaks down what I used and how it helped me reclaim my life. Living with mast cell activation syndrome (MCAS) can feel like fighting an invisible enemy. If you’re […]
Author: tickedoffcodess
How I Recovered from Rolling PEM: Part 3 – Quality of Life After Rolling PEM Crash Cycles
Reading Time: 8 minutesDiscover what life looks like after I recovered from rolling PEM. From pain reduction to cognitive clarity, Part 3 of my recovery story reveals how I reclaimed stability and joy.
How I Got Out of Rolling PEM: Part 2
Reading Time: 27 minutesIn these blog posts, I will tell you how I got into rolling PEM and what it did to my health and well-being (part 1). I will share how I got out of rolling PEM with the help of pacing, heart rate monitoring, and other strategies (part 2). I will also share with you how […]
How I Escaped the Horror of Rolling PEM: Part 1
Reading Time: 9 minutesIn these blog posts, I will tell you how I got into rolling PEM and what it did to my health and well-being (part 1). I will share how I managed to get out of rolling PEM with the help of pacing, heart rate monitoring, and other strategies (part 2). I will also share with […]
How I Escaped the Horror of Rolling PEM
Reading Time: 2 minutesHello, and welcome to my blog. In this series, I want to share my experience with rolling PEM, how I overcame it, and how my quality of life improved. If you are unfamiliar with the term, PEM stands for post-exertional malaise, a core symptom of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). It is a severe worsening […]
Rolling PEM: What It Is and How to Avoid It
Reading Time: 4 minutesIf you have ME/CFS or Long COVID, you may be familiar with the term post-exertional malaise (PEM), which refers to the worsening of symptoms after physical or mental activity that would not have caused a problem before illness. [1]Symptoms of ME/CFS | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome …. https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms.html Accessed 3/19/2023. PEM can last for days, […]
Sensory Overload
Reading Time: 2 minutesThis is an excerpt from an IG post I wanted to share in June 2021 that I never got around to posting. ⚠️ ⚠️ This is sensory overload!!!!! Out of the 8 senses, 2 of them are acting up, and 3 of them are overloaded. It has been 43 days since my sense of smell […]
Long Covid: Frightening Nightmares IRL
Reading Time: 4 minutesThanks to Long Covid, I’m reliving parts of my worst living nightmares: the nightmares of living with untreated Lyme disease and co-infections and the agony of my concussions all over again. The similarities between Long Covid, late-stage neurological Lyme, and post-concussion syndrome are uncanny. Add breathing difficulties on top of neurological symptoms, and everything seems […]
Nondisabled Privilege
Reading Time: 3 minutesI knew I was privileged when I got accepted into college and received a full 4-year scholarship. It takes plenty of privilege to succeed in high school, and it takes even more, to graduate from college. I’ve lived a privileged life, no doubt about it. But you see, some of that privilege came tumbling down […]
Why Ticked Off Codess?
Reading Time: 4 minutesHello, I’m Carol, and I’m a ‘Ticked Off Codess.’ In this post, I’ll delve into what it means to be a ‘Codess’ and why I’ve got every reason to be ticked off. As someone who has struggled with chronic illness most of her life, I’ve had to fight for my health in more ways than […]