Hello, I’m Carol, and I’m a ‘Ticked Off Codess.’ This chronic illness advocacy blog was born from years of frustration, resilience, and a refusal to stay silent. In this post, I’ll delve into what it means to be a ‘Codess’ and why I’ve got every reason to be ticked off.
The Short Version: I'm Carol — a software engineer living with Lyme disease, ME/CFS, MCAS, and Long COVID. After years of medical dismissal, misdiagnosis, and fighting to be heard, I channeled my frustration into this chronic illness advocacy blog. Ticked Off Codess is where I share real treatment protocols, adaptive living strategies, and the unfiltered truth about navigating life with multiple complex chronic illnesses. If the medical system has ever failed you, you're in the right place.
As someone who has struggled with chronic illness most of her life, I’ve had to fight for my health in more ways than most can understand. I was raised to believe in equality and perfection. Yet, I was always treated differently because of my gender. Any disappointment was not acceptable and often met with anger from my parents.